13 January 2016

2016 is going to ridiculously amazing

Happy New Year
A new year has arrived and a time to look forward - it's going to be an amazing year. The last 6 months have been a blur and a time of me pretending to be someone else.



The New Year was celebrated asleep on the couch!!!! I couldn't muster the energy to slap a picnic together and drag my big body to Footscray park to wait until the fire works. Walking up the stairs to the hospital leaves me breathless and heart pounding.

Since my hospital stay, I've had my echo cardio gram and all is fine. I had a halter monitor on for 24 hours where they picked up an ectopic heartbeat - can be normal as long as it doesn't get out of control. I'm guessing it's the strain the drug has put on my heart and organs. As the fluid dropped from my body the breathlessness seems to have sorted itself as well. I've dropped 3 kilos in 2 weeks without changing my diet much. :)

I've been taking the kids to radio, which is a little daunting with so many visibly sick people around for them to see. One Italian lady made things a little difficult as I try and normalize the situation - kind of like I'm having a beauty treatment in my waffle robe. She spotted me with Andres and called out to the heavens "Jesus have you got nothing better to do?!" And to "be strong". There I was trying to quieten her "Thank you and all the best to you". She was just being sympathetic to my cause and not realizing the impact she's having on the kids. Looking forward to the 28th January when it is another stage complete.

Meanwhile, Jana and John's birthday has been and gone - celebrating these 2 kids....


Some more of the birthday girl





We went to Luna Park so the kids could have some fun, which was all good until Alex and I were talking about my toenails. I damaged one at radio and it looks like I might lose it.'Mum I want the old version of you - before cancer!" He said as we were discussing how my toe nail looks like it might be falling off and may be infected. Docetaxol's nickname is the red devil! I didn't realise so many side effects would kick in after the last dose. And just then, a toddler stepped on my other big toe!! It stuck up and bled everywhere! I pushed it down and wrapped it up and headed off to the GP. So now soaking them each day to try and save them. I also bought some cheap shoes from Kmart so I can put my fat feet into other than thongs - I never thought I'd ever wear thongs again since leaving Qld. If I didn't have the fat feet I wouldn't have been wearing thongs and I wouldn't be nursing my toenails.

Today at radio, my redness and blistering is starting to look nasty. They loaded me up with some stronger cream, silicon patches and pads to stuff in my bra to prevent rubbing. Joy oh joy. The nurse said it will get worse before it gets better. Working from home to manage it a bit better.....and wearing big, loose fitting clothes :)


So this isn't my breakfast! I read somewhere that the healing properties of oats helps with radiotherapy - everything is worth a try.






1 comment:

  1. One thing after another! You deserve a medal for your stamina and endurance.

    ReplyDelete

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